GoKawiilScott Imbrie vividly remembers the first time he used a robotic arm to shake someone’s hand and felt the robotic limb as if it were his own. “I still get goosebumps when I think about that initial contact,” he says. “It’s just unexplainable.” The moment came courtesy of a brain implant: an array of electrodes that let him control a robotic arm and receive tactile sensations back to the brain.
Getting there took decades. In 1985, Imbrie had woken up in the hospital after a car accident with a broken neck and a doctor telling him he’d never use his hands or legs again. His response was an expletive, he says—and a decision. “I’m not going to allow someone to tell me what I can and can’t do.” With the determination of a head-strong 22-year-old, Imbrie gradually regained the ability to walk and some limited arm movement. Aware of how unusual his recovery was, the Illinois-native wanted to help others in similar situations and began looking for research projects related to spinal cord injuries. For decades, though, he wasn’t the right fit, until in 2020 he was finally accepted into a University of Chicago trial.
Scott Imbrie has shaken hands with a robotic arm controlled by a brain implant. The electrodes record neural signals that enable him to move the device and receive tactile feedback. Top: 60 Minutes/CBS News; Bottom: University of Chicago
Imbrie is part of a rarefied group: More people have gone to space than have received advanced brain-computer interfaces (BCI) like his. But a growing number of companies are now attempting to move the devices out of neuroscience labs and into mainstream medical care, where they could help millions of people with paralysis and other neurological conditions. Some companies even hope that BCIs will eventually become a consumer technology.
None of that will be possible without people like Imbrie. He’s a member of the BCI Pioneers Coalition, an advocacy group founded in 2018 by Ian Burkhart, the first quadriplegic to regain hand movement using a brain implant.
That life-changing experience convinced Burkhart that BCIs will make the leap from lab to real world only if users help shape the technology by sharing their perspectives on what works, what doesn’t, and how the devices fit into daily life. The coalition aims to ensure that companies, clinicians, and regulators hear directly from trial participants.
Ian Burkhart founded the BCI Pioneers Coalition to ensure that companies developing brain implants hear directly from the people using them. Left: Andrew Spear/Redux; Right: Ian Burkhart
The group also serves as a peer-support network for trial participants. That’s crucial, because despite the steady drumbeat of miraculous results from BCI trials, receiving a brain implant comes with significant risks. Surgical complications, such as bleeding or infection in the brain, are possible. Even more concerning is the potential psychological toll if the implant fails to work as expected or if life-changing improvements are eventually withdrawn.
Researchers spell this out upfront, and many are put off, says John Downey, an assistant professor of neurological surgery at the University of Chicago and the lead on Imbrie’s clinical trial. “I would say, the number of people I talk to about doing it is probably 10 to 20 times the number of people that actually end up doing it,” he says.
What Happens in a BCI Trial?
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