GoKawiilNew standardized form lets US cancer patients authorize release of records and tissue samples
Future of Cancer Care Today has introduced a single standing authorization form that US patients can use to request or direct release of their medical records, imaging files, lab and genomic data, and available tissue to recipients of their choice. The form specifies the patient's information, any personal representative's authority, and the releasing institutions, and covers materials including pathology slides, tissue blocks, blood, plasma and bone marrow samples across all dates of treatment. The organization is inviting patients and data-holding institutions to use the form and provide feedback.
GoKawiil's interpretation of the reporting above, not reported fact.
Patients seeking second opinions, clinical trial enrollment, or additional testing often struggle to obtain underlying materials like raw imaging files or tissue blocks, not just summary reports, which can delay care decisions. A standardized authorization could simplify this process across multiple institutions, though its real-world effectiveness will depend on adoption by hospitals and labs. Because the form is still being refined based on feedback, its eventual impact on patient access to their own biological data remains to be seen.
- A new standing authorization form allows US cancer patients to direct release of records, imaging, lab data, and tissue samples.
- The form addresses difficulty patients face obtaining underlying materials beyond standard clinical summaries.
- Future of Cancer Care Today is seeking feedback from patients and institutions to refine the form's usability.
Source: sijbrandijfoundation.org, 2026-10-15
Published there as: “Future of Cancer Care Today (FCCT)”
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