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Genetic Data

2 GoKawiil briefs on this topic

Cali Fund for genetic-data sharing collects just $10,588 from biotech firms

Two years after UN biodiversity talks created the Cali Fund to collect payments from companies using publicly available genetic sequence data, only a handful of small biotech firms have contributed, totaling $10,588. The fund had been projected to potentially raise as much as $1 billion annually, but actual contributions remain minimal, according to Amber Scholz, a microbiologist involved in negotiating the fund. Prozomix, a UK biotech firm, has given $5,000, the largest single contribution so far.

UK Biobank data leak triggers five-month researcher shutdown

An anonymous researcher alerted the UK Biobank in April to sensitive participant data being sold on Alibaba's Xianyu marketplace, prompting officials to work with UK and Chinese authorities to remove the listing. The biobank then suspended researcher access for nearly five months while investigating the breach and rebuilding its data security infrastructure, with access set to resume this month.